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People who are currently in receipt of a personal health budget or integrated personal budget (combining health and social care funding) are invited to share their experiences of a personal health budget in a survey being run by NHS England. Opening on the 1st March 2018 until 31st April, all survey responses will be anonymised and used to help improve how personal health budgets are offered in England.
The survey is being run on behalf of NHS England by an organisation called Quality Health. They have over 30 years’ experience of running NHS surveys and have the necessary data protection and data security accreditation.
Please register your interest or share the link below with people who would be interested in taking part in this survey:
We will be closed from Friday 22nd December 2017 to Tuesday 2nd January 2018.
Thank you for your continued support and wishing you a Merry Christmas and a peaceful new year.
Anne-Marie, Nick, Kate and Valerie
Money for training for you and your PAs
If you use your personal health budget to employ PAs, apply for funding from Skills for Care to pay for training.
It can cover the cost of care related training for you as an employer and to develop the skills of your PAs. People have previously applied for funding for training around first aid, moving and handling, infection control, being a good employer, qualifications and bespoke training.
To find out more, please contact us 0800 644 6414
Tonight’s episode of DIT SOS features Mark.
This is the heartwarming story of Mark’s new house and how his local community came together to help him and his family.
Marks sister, Michelle, is a member of the National Personal Health Budget Peer Network. Here’s their story in Michelle’s own words,
“Three years ago my brother was assaulted leaving him with quite complex needs and severe brain damage. We had to learn quickly but he is only 37 now, so we knew we wanted him to be at home living independently but he would need plenty of support. We met so many amazing people who have supported and guided us along our journey and finally we are in a good place. It has been hard work but so worth it when we see how happy he is now. My brother qualified for CHC and we chose to have a personal health budget. As a family we employ 9 people to support him in his own home. Because of the high level of one to one care my brother now receives, his awareness levels have drastically increased in only 5 months. We can spot infections which means we keep him out of hospital, have built strong links with his health professionals meaning A&E is somewhere we can avoid.
The positives of a PHB are endless but I know from experience getting there is challenging. Please don’t let this put you off as once you reach the end goal, I am sure you will look back and see how personal health budgets can change not only the individuals lives but many people around them. My whole family are in such a positive place only 5 months after implementing our personal health budget. Community spirit has pulled us through. Try to link up with as many support groups as possible, speak to people who have already been through it, you are not alone. Look for local Peer groups just don’t give up. To see more of my brother story and our journey watch DIY SOS 10th June BBC1 8pm. Our community came together and made my familys’ dreams come true.”
I am Jean Riley, the mother of a beautiful 26 year old daughter who has profound and complex needs.
When we adopted our daughter from an orphanage in Romania, we thought we were bringing her home to die between clean sheets, but she survived. She was 5 years old and weighed just 12lbs. She has multiple health needs including heart disease, liver disease, sight and hearing problems, deformed feet and what can only be described as post traumatic stress disorder, which manifests itself in extreme self injurious behavior. She could not sit up, walk, or crawl, and was very depressed. We later added autism and attachment disorder to the list of problems we would face in the future.
After years of operations and changes in our work patterns to accommodate 24 hour care, someone asked us who our social worker was. We did not have one. The following night a social worker appeared and we started on a journey of services trying to support our daughter. It was chaos. No one knew what to do or how to help. Eventually we were put on a pilot scheme for direct payments for children. This worked well, with staff being trained by us.
On retiring we moved to a house in a different local authority to offer our daughter a lovely environment in which to live. This began a horrendous battle with the new local authority to obtain support that would work for us. Their system was very different from the old local authority. When we did receive support it had to be given by an agency. We were shocked at the low standard of care provided by agencies and our daughter regressed into depression once more. After battling for years, which no family should have to do, we were finally given a personal health budget which has transformed our lives.
Children, young people and families’ personal health budget peer network
Thursday, 11th December: 11am to 2.30pm
Manchester Conference Centre, Sackville St., Manchester M1 3BB
Personal health budgets are still a relatively new idea within the NHS.
As of October 2014 people have had the ‘right to have’ a PHB and as such all CCGs need to have systems in place to offer personal health budgets to both children and adults receiving continuing care.
NHS England and Peoplehub have been successfully working together to influence the national policy direction for personal health budgets and to work alongside people tasked with introducing personal health budgets to do it well.
Up until now we have largely focussed on introducing personal health budgets for adults in receipt of NHS continuing healthcare. As the member of the NHS England personal health budgets team with responsibility for developing personal health budgets for children with other key partners, I am very keen to work directly with you as someone with a child with complex and continuing health care needs who understands the issues.
We need your input and guidance to ensure that personal health budgets work well for your children. This is a genuine opportunity to influence how we develop and implement personal health budgets. Don’t worry if you don’t know anything about them, we will take the time to explain everything to you so you feel confident to share your insights. We would really value your contributions.
We would like to invite you to come along to a meeting on 11th December to begin to think about how we can work together to influence this new policy going forward.
We can arrange and pay for a train ticket from your nearest train station to the Manchester Conference Centre, and will reimburse you £15.00 per hour whilst you are at the meeting.
If you are interested in coming along please go to the NHS England website to book a place. Follow this link http://www.events.england.nhs.uk/all/270
Personal Health Budgets Advisor,
Personal Health Budgets Delivery Team
Skipton House – 6D
Personal health budgets are still a relatively new idea in the NHS, but by April 2014, all CCGs will need to have systems in place to offer personal health budgets to both children and adults receiving continuing care. NHS England and Peoplehub have successfully worked together to influence the national policy direction for personal health budgets and have worked alongside people tasked with introducing personal health budgets to do it well.
NHS England personal health budgets team are very keen to work directly with you as someone with a child with complex and continuing health care needs who understands the issues.
Are you young and disabled and looking for a carer/personal assistant?
Would you like a carer who shares your interests as well as providing for your care needs?
We are making a brand new series that aims to find young disabled people likeminded carers.
If you are aged between 18 and 30, disabled and need regular care support we would love to hear from you.
The aim of this guidance document is to assist Clinical Commissioning Groups (CCGs) and other relevant bodies who commission NHS services and support, for example NHS England, to meet their duty to ensure people eligible for NHS Continuing Healthcare (NHS CHC) and Continuing Care for Children (CC) benefit from the “right to have” a personal health budget from 1st October 2014 as announced by Government in October 2013 and provided for in the National Health Service Commissioning Board and Clinical Commissioning Groups (Responsibilities and Standing Rules) (Amendment) (No. 3) Regulations 2014.
This document also includes links to the personal health budgets toolkit.
This toolkit includes detailed practical information and good practice advice on successfully implementing personal health budgets.